Get in Touch. Get Involved.

Feel free to contact us and follow us on social media to keep up to date with all the available information. 

breathingtogether.cyprus@gmail.com

Affiliate Organisations

Cyprus Alliance for Rare Disorders

C.A.R.D. – Cyprus Alliance for Rare Disorders (raredisorderscyprus.com)

Go To Affiliate Site

Respiratory Physiology Laboratory at Medical School of University of Cyprus

University of Cyprus – Respiratory Physiology Laboratory (res-lab-pcd-service.eu)

Go To Affiliate Site

Cyprus Institute of Neurology and Genetics

The Cyprus Institute of Neurology and Genetics (cing.ac.cy)

Go To Site

ERN LUNG

ERN-LUNG – help and support for people with rare lung conditions (europeanlung.org)

Go To Site

BEAT PCD

BEAT-PCD (squarespace.com)

Go To Site

Archbischop Makarios III Children’s Hospital

Archbishop Makarios III Hospital | Οργανισμός Κρατικών Υπηρεσιών Υγείας (shso.org.cy)

Go To Site

Other Patient Organisations

Belgium

Support Group: Dyskinesia

Website: http://www.dyskinesia.be/

 

 

Bulgaria

Support Group: Първична цилиарна дискинезия / Синдром на Картагенер

Social Media: Facebook page name: Първична цилиарна дискинезия / Синдром на Картагенер

 

Finland

Support Group: The Organisation for Respiratory Health in Finland (Hengitysliitto ry)

Website: www.hengitysliitto.fi

 

 

France                                                                                                            

Support Group: ADCP Association

Social media: (2) ADCP Association Dyskinésie Ciliaire Primitive | Facebook

Website: https://www.adcp.asso.fr/

 

Georgia

Contact: Tamar Makhatadze mezmerize225@gmail.com

 

 

 

Germany

Support Group: Kartagener Syndrom und Primäre Ciliäre Dyskinesie e.V.

Social media: (2) Kartagener Syndrom und Primäre Ciliäre Dyskinesie e. V. | Facebook                                                                                                        

Website: https://www.kartagener-syndrom.org/

 

Netherlands

Support Group: PCD Belangengroep

 Website: https://www.p-c-d.org/

 

Norway

Support Group: Norsk forening for cystisk fibrose (PCD)

Website: www.cfnorge.no

 

 

 

 

Italy

Support Group: Associazione italiana discinesia ciliare primaria – sindrome die Kartagener Aps

Website: https://www.pcdkartagener.it/

 

Poland

Support Group: Polskie Towarzystwo Dyskinezy Rzęsek

Website: http://ptdr.org.pl/

 

Spain

Support Group: Asociación Nacional de Pacientes con Discinesia Ciliar Primaria DCP España/PCD Spain

Contact: Trini López discinesiaciliarprimaria@gmail.com

 

 

Sweden

Support Group: Riksförbundet Cstisk Fibros/ Swedish Cystic Fibrosis Association (RfCF)

Website: www.rfcf.se

 

Switzerland

Support Group: Sebsthilfegruppe Kartagener Syndrom und Primäre Ciliäre Dyskinesie Deutschschweiz

Contact: Claudia Schmid c.schmid69@gmx.ch, Hansruedi Silberschmidt hr@silberschmidt.ch

 

United Kingdom

Support Group: PCD Support UK

Website: www.pcdsupport.org.uk

 

 

United States of America

Support Group: PCD Foundation

Website: www.pcdfoundation.org

 

Australia

Support Group: PCD Australia

Website: www.pcdaustralia.org.au